We are all over the world. Some of us are in India, Pakistan, Mexico, Iran, the US, Australia and yes, New Zealand. It is kinda sad that endometriosis is so wide spread and seems to cross all borders. It doesn’t seem to matter where we are, what part of the globe we reside in or what we do, we all share endometriosis and one particular emotion with it.
It is that feeling of being alone with endometriosis. We feel isolated, disconnected from others and like we have a dreadful secret we don’t quite know how to share with others. It is so personal and so private, so how can we possibly share it with others? This leaves us, hiding on some level. Hiding from the feeling that no one could possibly understand us or appreciate what we have been through. We become a little like hermits in this state, partly because of the fear of sudden onset of pain and inevitably having to somehow explain it to someone… a real dread! Partly though because we know that what we have is not the usual conditions. People can’t relate to it that easily. You say the words “endometriosis” and people inevitably respond with, “What is that?…What did you call it? Endom….what?” It is not like saying, I have diabetes or a heart condition. Somehow people are more unfamiliar with these conditions. They know about them and know how to respond to you when you tell them. With endometriosis, their reaction is seldom the one you feel like explaining. It is all so yucky to explain… we have cysts and clots in the wrong places—well you know…those womanly bits… em, em blush!
In most social circumstances we can almost avoid going there. People don’t need to know! It only really comes up if you start being fussy about your diet. I usually just say I am on a special diet… it really depends on who asks.
These days, I am much more open about it all. I actually embrace the questions and even more importantly the answers… kinda a given since I write this blog!
Since opening up, often to complete strangers, about endometriosis and delving into a number of the symptoms (hey, you never know if the girl you are sharing with might have it!) I have found a surprising response… it is usually quite positive. In many cases, women will open up and either share that they too have endometriosis or know someone that does. They are often quite sympathetic and understanding—not the response we expect really! Just don’t go trying this on men. You most probably will get more of the “endo what?”
It kinda got me thinking though… here we all are, in different parts of the world, living in our own little worlds, suffering with endo and getting through our daily routines with work, family, partners etc. and feeling all these emotions of being alone and the ironic thing is, we are all in this together. We inevitably share that same emotion! Ironic, don’t ya think?
It doesn’t matter how nasty you feel and how much pain you are in, there is someone out there who is sharing that same pain with you, somewhere in the world. It may not be in the same country or even on the same side of the world but someone is with you, in that moment in pain and somehow that is kinda comforting… don’t you think?
There are moments with this blog that I feel these strong desires to fly around to certain women that are suffering and just sit by their side and help them heal. I want to go to their aid and make it all go away! I want to console them, help them and ease the pain out of their poor battered bodies! It is hard being so far away and not being able to just pop over and be there for you all! New Zealand is just so far away!
The good news is that through this blog I can be there for you… give you hope and hopefully guide you to feel better. You can get better, you can get your life back and healing is within your reach… just keep trying and keep going and you will get there, I promise!